How to cite this paper

Tovey-Walsh, Bethan Siân. “Disabled by Default: how markup can support best practice in accessibility.” Presented at Balisage: The Markup Conference 2020, Washington, DC, July 27 - 31, 2020. In Proceedings of Balisage: The Markup Conference 2020. Balisage Series on Markup Technologies, vol. 25 (2020). https://doi.org/10.4242/BalisageVol25.Tovey-Walsh01.

Balisage: The Markup Conference 2020
July 27 - 31, 2020

Balisage Paper: Disabled by Default: how markup can support best practice in accessibility

Bethan Siân Tovey-Walsh

Bethan Tovey-Walsh is a PhD student in linguistics, studying the language-mixing behaviour of Welsh-English bilinguals, and is working on a part-of-speech tagger for mixed Welsh-English texts. She is particularly interested in the problem of automatic language recognition for individual words. She was formerly a content architect at Oxford University Press. Even more formerly, she worked for the Oxford English Dictionary, specialising in medieval English.

Copyright ©2020 by the author. Used with permission.

Abstract

Accessibility is not a single, straightforward concept. For a particular user, the accessibility of any resource is determined by a web of factors, first by the nature and severity of the disability (cognitive, physical, or mental), then influenced by poverty, tech access, language, and many other factors. Designing content to take account of accessibility on this wide scale is a daunting task. Markup is well placed to address accessibility, because markup is optimized to encourage choice. It allows us to say what things are, and choose later (or, better, allow the user to choose) what that means for how content is displayed, printed, spoken, or otherwise manifested in the output. It also allows us to say how things relate to each other, so that we can easily offer choices of the same content in different formats. Concrete examples of what this means in some common markup outputs will highlight things we could be doing in our own practice to encourage more accessible content creation from markup.

Table of Contents

Introduction
Disability in the British and American workplace
Markup technologies and disability
Defining Disability
Disability and impairment: a brief overview of the theoretical debate
Accessibility Requirements
Seeing the wood, not the trees
Demolishing barriers before building new toys
Markup and Accessibility
Labelling
Optionality
Deferment
Conclusions

Introduction

In June 2020, Twitter introduced a new feature: in addition to typing out 280-character masterpieces, users on iOS can now record up to 140 seconds of audio to share as a tweet Patterson2020. Once details of the new feature became clear, Deaf/hard-of-hearing Twitter users were quick to condemn its complete inaccessibility Katz2020. The problem is not so much that the audio recordings themselves are inaccessible to Deaf people, but that Twitter had included no way to caption or add alt-text to audio tweets. Even if a tweeter wanted to make their audio tweet accessible, there was no obvious way to do so. It emerged that Twitter has no dedicated accessibility team, but rather relies on a group of employees who volunteer some of their regular work time to accessibility initiatives Lyons2020.

This lack of trained accessibility experts may help to explain Twitter’s well-meaning but wrong-headed response to criticism, which was to argue that making audio tweets accessible would have delayed the release of the new feature by a year or more Alcantara2020. In response to lawyer and disability advocate Matthew Cortland, the @TwitterSupport account claimed that this is an early version of this feature and we’re exploring ways to make these types of Tweets accessible to everyone. TwitterSupport2020. However, as Cortland pointed out, national legislation such as the Americans with Disabilities Act prohibits this accessibility-as-afterthought approach Cortland2020. Accessibility must, by law (in the United States, at least), be baked in to new products and features. The voice-tweets debacle highlighted the neglect of accessibility in technology development. Even companies with significant resources to spare are either unwilling to consider the needs of disabled users, or unaware of the pressing need to do so. Technology companies are keen to publicize their efforts to create an inclusive culture for employees, yet disability rarely (if ever) features in reports of workforce diversity OHear2016.

Disability in the British and American workplace

In the U.K., disabled people are less likely to work in higher-skilled jobs DWP2020. Disabled people make up around 19% of people of working age in the U.K. and 13% of the total U.K. workforce, meaning that 57% of U.K. disabled people are in the workforce (employed or unemployed), as compared to 85% of non-disabled people BCS2020. In the United States, only around 21% of disabled people are part of the workforce, compared with around 69% of non-disabled people Katz2020. Disabled people are significantly more likely to be unemployed in the U.S.A. (7.3% versus 3.5% of non-disabled people BLS2020a). In the U.K., they are somewhat more likely to be unemployed (4% versus 3% of non-disabled people BCS2020).

On average only 11% of U.K. IT specialists are disabled, a number which drops to 7% in London BCS2020. Only 8% of IT directors are disabled; disabled IT specialists are most likely to be employed as user support technicians BCS2020. IT specialists with disabilities earn around 10% less than those without disabilities, and are more likely to be unemployed or self-employed BCS2020. In the U.S., 3.4% of non-disabled workers are employed in computer and mathematical occupations, while only 2.2% of disabled workers are employed in the same category. Furthermore, only 1.2% of disabled women are employed in these occupations, compared with 3% of disabled men and 4.8% of non-disabled men. In terms of absolute numbers, this means that around 129,000 disabled people and around 5,157,000 non-disabled people are employed in computer and mathematical occupations BLS2020a.[1]

The reasons why disabled people are underrepresented in employment, in IT-related occupations in general, and in senior IT roles in particular are complex. It would be reductive to attribute these figures entirely to prejudice, to doubts about the capacity of disabled people to perform well in employment, or to unwillingness to make workplaces accessible, although these factors undoubtedly play a part BonaccioEtal2020. In the U.K., for example, disabled people are less likely to have attained higher education qualifications, making it harder for them to apply successfully for so-called higher-skilled jobs Berthoud2011; ONS2019. Nonetheless, whatever the causes of underrepresentation, these figures show that it is a real phenomenon. Furthermore, the category of disability is broad, and (depending on whose statistics we are reading) may cover deafness and hearing difficulties, blindness and vision difficulties, mobility difficulties, difficulties with decision making, concentration, and memory, emotional and mental difficulties, and more BLS2020b; DWP2020. Employment rates for people with different kinds of disability vary greatly: in the U.K., for example, people with mental health conditions are significantly less likely to be employed than those with a muskuloskeletal condition DWP2020. Even a company that employs numerous people who class themselves, or are classed by others, as disabled may have little or no representation for a particular type of disability in its workforce.

Markup technologies and disability

These statistics provide valuable context for Twitter’s failure to produce accessible technology. By failing to include the perspectives of disabled users in their development process, and failing to have a dedicated team with expertise in accessibility at the centre of the design of new features, Twitter created a professional environment in which accessibility is peripheral and optional.

The creation of fully or partially inaccessible technology products, systems, and services is not exclusive to Twitter, of course. Accessibility failures in online resources have been identified as a significant barrier for disabled people’s access to employment Cahalane2018. Universities in the United States have been sued for using software and data formats that are not fully accessible to blind students Sidley2014. In parallel with these impediments to functioning in domains such as employment and education, inaccessibility can also impede disabled people from participating fully in social and cultural community, locking them out from political candidates’ websites or the shared discourse of social media memes Abrams2019; Greenspan2020.

However, technology undoubtedly has the potential to improve disabled people’s quality of life. Modern technologies can facilitate flexible employment, providing ways for workers to work outside the traditional office environment, or making it possible for physically disabled workers to interact with work equipment Joachim2006. They can provide community for people whose disabilities impede socializing in person Ryan2018, and allow disabled activists to organize political protests Ryan2014. They can improve access to education, for example by making materials available without the need to travel to libraries, or by offering virtual learning environments and e-learning content CannEtal2002; Sloan2002. They key requirement is, of course, to ensure that any technology is accessible.

I will consider how markup technologies, in particular, can help developers and engineers improve accessibility. Before discussing this, however, it is important to ensure that we understand what is meant by disability, which is a more complex concept than it might at first appear. Following a discussion of disability, I will briefly consider what it means to create accessible technology, before outlining three key features of markup that can easily be exploited to improve accessibility.

Defining Disability

The ISO 7001:2007 (Graphical symbols—Public information symbols) standard specifies the symbol as the International Symbol of Access (ISA) ISO2007. The stylized image of a stick figure using a wheelchair is ubiquitous in countries worldwide, labelling toilets, entrances and exits, buildings, seats, parking spaces, buttons, vehicles, and a range of other things which are accessible (or claim to be accessible) to people with disabilities. Although clear and widely understood, the symbol has been criticized by many disabled people. There are those who feel that the icon is too static, representing the disabled body as passive, and who advocate for an updated icon representing a wheelchair user propelling the chair forward (Figure 1) Hendren2016.

Figure 1: The Accessible Icon Project’s Modified ISA icon.

The Accessible Icon Project’s Modified ISA icon.

For other disabled people, the focus on wheelchair users is itself a problem, as it encourages a simplistic and monolithic understanding of disability. This, they believe, exacerbates the difficulties faced by people with invisible disabilities (i.e. those which are not immediately obvious by looking at the person’s body or at the assistive devices they use), who experience harassment and may be prevented from using accessible services by staff or by interference from members of the public who believe that a disabled person will always look disabled Ace2020; Carrington2020; JaniFriend2019.

Disability is clearly not as simple a phenomenon as the most prevalent cultural representation of disabled bodies would have us believe. This is why it is essential to define our use of the term before trying to think about making technology that is accessible to disabled users: until we know who we mean by disabled users, it is impossible to consider their needs. The following discussion will not attempt to give a comprehensive survey of every aspect of the theory of disability. Neither does it claim to provide the single correct or authoritative analysis of disability as a concept. Rather, the discussion will offer one way of thinking about disability which I believe will be helpful to markup technologists who want to integrate accessibility into their work.

Disability and impairment: a brief overview of the theoretical debate

Some of the most prominent definitions of disability are those used by governments and international agencies in order to collect data, write legislation, and enforce legal standards. Two features which are found in most such definitions are:

  1. A trait (physical or mental) which is labeled or experienced as an impairment or a dysfunction;

  2. A limitation (social or personal) associated with this trait. WassermanEtal2016

Such definitions fit broadly under what is called the Medical Model of disability, which sees disability as a biomedical characteristic of the individual and prioritizes medical intervention to bring the individual as far as possible into line with social norms HaegeleHodge2016. As such, the Medical Model necessarily characterizes a disabled individual as deficient, and in need of correction. The Medical Model became the dominant way of interpreting disability in many societies by stepping into the void left by the waning of superstitious models, in which disability is seen as a punishment from a god or other supernatural agency. The Medical Model is primarily controlled by medical and allied professionals, rather than by disabled people themselves. Its dominant form of discourse is to present disability as a personal tragedy whose best outcome is treatment make the disabled person as normal as possible Finkelstein1999.

In its dual conception of disability as the interaction between an impairment on the one hand and the barriers experienced as a result of that impairment on the other, modern definitions constructed under the Medical Model align with those put forward by proponents of the Social Model of disability. This latter model, developed in Britain in the 1970s, defines impairment as a physical or mental condition and disability as the barriers experienced by a person as a result of their impairment. Whereas Medical Model definitions tend (as summarized above) to fold both the impairment and the limitations it causes into one overall concept, and to call that concept disability, the Social Model emphasizes the view that people with impairments are disabled by society’s unwillingness to accommodate them ShakespeareWatson1997. In this interpretation, disabled is as much a verb as it is an adjective: the disabled person has been disabled by society. Disabled is not an individual characteristic, necessarily ascribed to any impaired person, but the description of a state caused by systemic oppression. Whereas the medical model implies that impairment is, in itself, a barrier to well-being, the social model instead argues that reduction in well-being is not an inevitable consequence of impairment, but rather the result of facing socially-constructed barriers WassermanEtal2016.

Critics of the social model argue that, in its effort to highlight the impact of systemic barriers, it fails to account for many aspects of the lived experience of disabled people. In particular, they claim that the social model’s separation of impairment and disability does not allow for an examination of how these two aspects of experience are interwoven in the lives of disabled people, ignoring the reality of embodiment Pinder1995. There are aspects of many impairments which are either objectively harmful to quality of life (such as chronic pain) or which necessarily exclude disabled individuals from experiences considered enjoyable or important (e.g. a blind person’s inability to perceive a work of visual art) Tremain2017. In response to such criticisms, Finkelstein2001 asserts that the social model is not intended to model the lives of individuals with impairments. While a given individual may interpret their impairment(s) in a variety of ways, on a sociopolitical level having an impairment means being a member of an oppressed class. The social model of disability is concerned with systems of oppression (that is, with the processes which disable people), not with individual characteristics. Individual experiences relate to the nature of impairment and not to the nature of disability as a social force Finkelstein2001. Criticizing the Social Model for failing to account for individual experience is therefore something of a category error, because the Social Model is not intended as a way to understand impairment.

A concrete example may help to clarify the terms used in this ongoing debate. A person with high myopia (whose uncorrected vision is 20/400 or worse) has an impairment, which may be categorized as a type of blindness WHO2015. Their visual functioning is much worse than that of the average person, with high myopia currently affecting only around 3% of the world’s population WHO2015. In most wealthy countries high myopia is rarely thought of in the same terms as blindness; indeed, people with high myopia are unlikely to think of themselves as disabled, and are unlikely to be classified as such for legal purposes, because their myopia can be corrected to statistically normal (or 20/20) vision with glasses[2] Duff2019; Katz2020; SuttonvUSA1999. Without corrective lenses, however, the consequences of high myopia can be devastating, leading to loss of educational and professional opportunities, and making everyday activities difficult to accomplish, as well as potentially causing headaches and fatigue Jacobs2018. In Social Model terms, high myopia is always an impairment, but it is only a disability in contexts where corrective lenses are not provided to those who need them. In countries where eyeglasses are affordable and easily-acquired, and particularly where there is governmental assistance for those who could not otherwise afford eyeglasses, high myopia is essentially not disabling: it is easily corrected; there is little or no social stigma attached to wearing eyeglasses; and (when corrected) it causes no secondary symptoms which might reduce functioning. However, where people with high myopia are prevented by poverty or other circumstances from acquiring eyeglasses, they are disabled. Medical models of disability see this as an individual attribute: the individual is disabled because they have an impairment that impedes daily functioning. The Social Model sees it instead as an imposed state: the individual is disabled by society, because the means to compensate for their impairment is available, but not provided.

In the remainder of this paper, I will use the terms impairment and disability in their Social Model senses, the former to refer to reduction of physical, mental, or emotional function or capacity as compared to the statistical norm, and the latter to refer to the social barriers that prevent people with impairments from participating fully in daily life. I will use the term disabled people to refer to people with all kinds of impairments; I prefer this term to people with disabilities, which implies that disabilities are attributes of the individual, rather than being socially imposed.

Accessibility Requirements

Seeing the wood, not the trees

While these (and other) debates over the best way to interpret disability may seem quite removed from the day to day activities of the markup technologist, designing well for accessibility is in fact made easier by grasping the distinction between impairment and disability. If we focus our accessibility concerns on impairments, we may do well at providing solutions for specific groups of people and the barriers caused by their impairments. However, we are nonetheless likely to fail at producing genuinely accessible outputs, because we are solving for individual attributes, and not for systemic barriers. We need not necessarily pick a side to support in the ongoing philosophical debates, but our attempts to provide genuinely accessible products and services will be aided by thinking about how the disablement of disabled people happens.

To return briefly to the example of Twitter’s audio tweets, we might at first think that, for Twitter to avoid accessibility problems, it would have been enough to include Deaf people with expertise in accessibility in the design process. Certainly, this would probably have alerted the company to the need for some function such as captions or alt-text in order to include Deaf and hard of hearing users. However, the voice tweets also show a flashing image of the user’s profile picture while the audio tweet is playing. Flashing images can cause seizures in people with epilepsy. In addition, the voice tweets may be inaccessible to blind users whose assistive software (such as screen readers) cannot identify an audio tweet Katz2020. Thinking of accessibility on a specific-impairment level is almost always inadequate. This includes assuming that having one disabled person on a team is enough for accessibility requirements. A single person with a particular profile of impairments can never represent disability as a whole, and should never be expected to do so.

Demolishing barriers before building new toys

Keeping accessibility central to any process means listening to disabled people when they talk about the barriers they face. Technological solutions that fail to address the actual needs of disabled people are not an accessibility triumph. A notorious example is the succession of sign-language gloves which regularly make the news, win prizes, and are encouraged by academic engineering or design departments without input from experts in the signed language. Sign languages are generally much more than just the hand shapes, using facial expression, eyebrow position, and body stance for various grammatical functions Erard2017. This is just one of the many reasons why sign-language translation gloves are a practical impossibility, at least without some very significant advances in technology GrieveSmith2016. More importantly, such solutions add little value to the everyday lives of Deaf and hard of hearing people. In many cases, they basically do no more than speak as the person signs English words letter-by-letter. They can hardly make daily interactions more accessible for Deaf people, and require no effort on the part of anyone except the Deaf person (unlike, say, encouraging the widespread learning of signed languages, or providing funding for interpreters) GrieveSmith2016.

Jackson2019 refers to this type of technological gimmick as a Disability Dongle, a well intended elegant, yet useless solution to a problem we never knew we had[, ...] most often conceived of and created in design schools. This kind of project is often put together with little or no input from the disabled people it claims to help, solving problems in ways that are expensive and unlikely ever to make it to production, let alone general availability Eveleth2017; Smith2019. As Smith2019 points out, these fanciful approaches to accessibility also locate responsibility with the disabled individual, instead of with their environment. If a place is inaccessible because of stairs, the sensible answer is to install ramps and lifts, or to build alternative routes, rather than expecting every single person with a mobility impairment to acquire an expensive, clunky, precarious stair-climbing wheelchair Smith2019. Designing for accessibility is not just about thinking up new ways of compensating for particular types of physical or mental difference. In particular, it is not about trying to make disabled people’s bodies and minds function like those of their non-disabled counterparts. Instead, it is about developing an understanding of society’s disabling barriers.

Understanding these barriers entails understanding how disablement interacts with other group characteristics such as age, nationality, and wealth.[3] As discussed above, an impairment like myopia that is barely a problem in some countries may be a source of significant disablement in others. It is also more likely to be disabling for poor people than for the wealthy, who are unlikely to lack access to corrective lenses WHO2015. The example of myopia is also a reminder that there are groups of people who, although they may not categorize themselves as disabled, will nonetheless benefit from greater accessibility. These include people who experience loss of function or capacity as the natural result of ageing: in the United States, 75% of people aged over 70 have hearing loss Rooth2017, and the prevalence of vision impairment rises from 5.25% for people aged 75-79, to 25.6% for those aged 80 and above NEI2010. Furthermore, fairly large numbers of people with impairments of various kinds (especially developmental or mental health conditions) go undiagnosed, a problem which, in the U.K. and U.S. at least, is suffered disproportionately by minoritized groups (particularly women/girls, people of colour, and people in low-income households) DavisEtal2008; Gould2011; Haney2016; WigginsEtal2020; YeattsEtal2003. This is another strong motivation for targeting barriers rather than individuals’ impairments: removing barriers does not require that individuals must identify (or be identified) as disabled in order to benefit from accessibility, and it does not wait until a disabled person speaks up to say that they are experiencing a barrier. Accessibility is instead offered to all as a standard part of the product or service.

Markup and Accessibility

Having outlined what I believe to be the most useful way to approach accessibility, by thinking of disability in terms of barriers to be demolished, I will now briefly sketch out three aspects of markup which are particularly well suited to supporting accessible design.

Labelling

In a very basic sense, markup is a way of labelling content. It takes data, and stores the things we want to say about that data alongside it, but separate from it. This has numerous advantages for accessible design. Not only does it facilitate the two characteristics of markup discussed below (optionality and deferment), it also allows us to label our content in as many ways as is useful to us and to our users.

Both explicit and hidden labels can be of use in accessible design. Although the rise in demands for trigger warnings on potentially distressing materials has led to outrage and is a matter of ongoing debate Halberstam2017, the medical research largely supports their usefulness in decreasing the likelihood of distress Boysen2017. Like age ratings, or the little text boxes on the back of a DVD case declaring that the contents contain strong language and nudity, trigger warnings allow the consumer the choice to avoid content which they consider inappropriate. And whereas clinicians may argue that trigger warnings are specifically an accommodation for students with mental health impairments Boysen2017, the accessibility approach advocated here instead offers this kind of labelling as an accommodation for anyone who finds it useful, regardless of their diagnosis status. Whether or not distress or any other emotional reaction is considered pathological is not decided by those who experience the distress, but by the medical community, whose track record of undervaluing reports of pain and distress is not encouraging ChenEtal2008; DovidioEtal2016; DubbinEtal2013; HoffmanTarzian2001; PelletierEtal2014; SamulowitzEtal2018. Offering as much control as possible to content consumers bypasses the need for them to seek medical endorsement before expressing their accessibility needs.

Other types of labelling can help to identify content with a variety of potentially inaccessible features. It needn’t be the case that designers have to give up on features they find attractive, such as low-contrast colour palettes, flashing images, audio or video content, as long as these aspects of the content are clearly labelled as such. Knowing what to label is, of course, key to making the most of this aspect of markup, which is why involving a variety of disabled people in the design process is crucial wherever possible.

Optionality

Markup can shape what we do with content, making certain actions easier or harder to perform than others SperbergMcQueen1991. One of the most powerful features of full-featured declarative markup, from an accessibility standpoint, is its support for optionality. While labelling is useful, it can only go so far. It may be helpful to a user to warn them that a particular part of the content contains a flashing image, but it is more helpful to replicate the content without the flashing image and give the user the option to experience that content instead.

Because declarative markup, and XML in particular, can describe the relationship between chunks of content easily and intuitively, it is easy to represent various different options as, in essence, the same content, by making them all siblings, children of a parent X. The children have a shared identity as child of X, allowing an intuitive understanding of them as interchangeable, but different, representations of the content of X. When an end-user accesses X, they can (for example) be offered the option of these different formats or versions, or use settings to control which version is served up to them automatically. They might also choose to omit content that has particular labels, such as trigger warnings or age ratings, regardless of its format, or they might be offered the option to ask for a warning before such content is presented to them.

By facilitating optionality in content development, a markup language like XML makes accessibility far easier to achieve. A single document can be maintained which manages different versions of the content, labelled according to the accessibility barriers which are present or absent in each version. By considering which barriers are addressed by a given version of a chunk of content, we are reminded that accessibility is not all-or-nothing. Different impairments have different needs, and accommodations for one group may construct barriers for another. We should not be attempting to force content into a single accessible format, because there is no such thing. Instead, embracing optionality is a recognition that any content entails the presence of barriers to some people’s access, and that the only truly accessible solution is to provide different versions that target different barriers.

Deferment

Declarative markup allows us to defer decisions about how content should be processed, representing what the content is, and allowing decisions about what that means for how it is presented or used to be taken at a later stage SperbergMcQueen1994. In this sense, it intersects with what Piez2001 calls proleptic markup, whose primary aim is to facilitate future productive uses and exchanges of the content, rather than to document it in a specific, pre-existing format.

Deferment is the logical consequence of prioritizing optionality in accessible design. To a large extent, the process of deferment should continue until the content reaches the end-user. Of course, this is a relative statement: decisions about the content itself, as well as aesthetic decisions about its presentation, need not be deferred to the user. But letting the user have control over whether they receive audio or video or written content, or whether the audio content includes background music and sound effects, or whether the video content includes captions, and so on, allows the user to define their own, bespoke set of accessibility needs.

Rather than offering content for specific sets of users, as defined by particular impairments, the deferment approach simply offers content, with access to a variety of options. Of course, this level of deferment will not always be possible: marked-up content whose end-purpose is physical printing must reach a fixed form before being sent to its end consumers, for example. Nonetheless, well-designed markup can allow various different printed versions with different accessibility features. And with so much marked-up content destined for digital formats, it is certainly worthwhile for all markup technologists to explore the advantages of deferment in producing accessible content.

Conclusions

This paper is a brief and introductory overview, aiming to inspire discussion about the accessibility advantages of using declarative markup. I have not discussed questions of the accessibility of markup technologies themselves, or the diversity and disability awareness of markup as a specific corner of the tech industry. These are questions which nonetheless need to be investigated, since supporting accessibility with markup is only a partial victory if the technologies to do so are not themselves accessible.

Nevertheless, I hope that the outline above will serve to provide an up-to-date theoretical background for markup technologists who want to engage with accessibility. Thinking about markup in terms of what it can offer not only to the immediate end-user, but also to future users with potential new accessibility technologies available to them, is a starting point for creating markup projects with high value for disabled users.

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[Finkelstein1999] Finkelstein, V. (1999). The biodynamics of disablement. In H. Cornielje, J. Jelsma, & A. Moyo (Eds.), Proceedings of the Workshop on Research Informed Rehabilitation Planning in Southern Africa. Department of Public Health, Leidse Hogeschool, Leiden.

[Finkelstein2001] Finkelstein, V. (2001). The social model of disability repossessed. Manchester Coalition of Disabled People, 1–5.

[Gould2011] Gould, J., & Ashton-Smith, J. (2011). Missed diagnosis or misdiagnosis? girls and women on the autism spectrum. Good Autism Practice (GAP), 12, 34–41.

[Greenspan2020] Greenspan, R. E. (2020). ‘I wish we could connect on this level.’ memes still aren’t accessible to people who are blind. what’s being done about it? Retrieved January 27, 2020, from https://time.com/5759721/meme-accessibility-blind/

[GrieveSmith2016] Grieve-Smith, A. (2016). Ten reasons why sign-to-speech is not going to be practical any time soon. Retrieved April 12, 2016, from http://grieve-smith.com/blog/2016/04/ten-reasons-why-sign-to-speech-is- not-going-to-be-practical-any-time-soon/

[HaegeleHodge2016] Haegele, J. A., & Hodge, S. (2016). Disability discourse: Overview and critiques of the medical and social models. Quest, 68(2), 193–206. doi:https://doi.org/10.1080/00336297.2016.1143849.

[Halberstam2017] Halberstam, J. (2017). Trigger happy: From content warning to censorship. Signs: Journal of Women in Culture and Society, 42, 535–542. doi:https://doi.org/10.1086/688189.

[Haney2016] Haney, J. L. (2016). Autism, females, and the DSM-5: Gender bias in autism diagnosis. Social Work in Mental Health, 14, 396–407. doi:https://doi.org/10.1080/15332985.2015.1031858.

[Hendren2016] Hendren, S. (2016). The accessible icon project. Retrieved 2016, from http://accessibleicon.org/

[HoffmanTarzian2001] Hoffmann, D. E., & Tarzian, A. J. (2001). The girl who cried pain: A bias against women in the treatment of pain. The Journal of Law, Medicine & Ethics, 28, 13–27. doi:https://doi.org/10.1111/j.1748-720X.2001.tb00037.x.

[ISO2007] ISO. (2007). ISO 7001:2007 Graphical symbols — Public information symbols. Retrieved from https://www.iso.org/standard/41081.html

[Jackson2019] Jackson, L. (2019). A community response to a #DisabilityDongle. Retrieved April 22, 2019, from https://medium.com/@eejackson/a-community-response-to-a-disabilitydongle-d0a37703d7c2

[Jacobs2018] Jacobs, A. (2018). Global need for eyeglasses: The biggest health crisis you’ve never heard of. Retrieved May 5, 2018, from https://www.seattletimes.com/nation-world/new- focus-on-global-need-for-eyeglasses/

[JaniFriend2019] Jani-Friend, I. (2019). My disabilities are invisible. I shouldn’t have to prove them to strangers. Retrieved August 9, 2019, from https://www.theguardian.com/commentisfree/2019/aug/09/disabilities- invisible-prove-stangers-disabled-services-illnesses

[Joachim2006] Joachim, D. S. (2006). Computer technology opens a world of work to disabled people. Retrieved March 1, 2006, from https://www.nytimes.com/2006/03/01/technology/computer-technology- opens-a-world-of-work-to-disabled-people.html

[Katz2020] Katz, S. (2020). Twitter just rolled out a feature that’s inaccessible to disabled users. Retrieved June 19, 2020, from https://slate.com/technology/2020/06/twitter-voice-tweets-accessibility.html

[Lyons2020] Lyons, K. (2020). Twitter’s audio tweets revealed an accessibility miss, and now the company wants to fix it. Retrieved June 18, 2020, from https://www.theverge.com/2020/6/18/21296032/twitter-audio-tweets- accessibility-volunteers

[NEI2010] National Eye Institute. (2010). Vision impairment tables. Retrieved February 7, 2020, from https://www.nei.nih.gov/learn-about-eye-health/resources-for-health- educators/eye-health-data-and-statistics/all-vision-impairment-data-and- statistics/vision-impairment-tables

[OHear2016] O’Hear, S. (2016). Tech companies don’t want to talk about the lack of disability diversity reporting. Retrieved November 7, 2016, from https://techcrunch.com/2016/11/07/parallel-pr-universe/?guccounter=1

[ONS2019] Office for National Statistics. (2019). Disability and education, UK: 2019. U.K. Government.

[Patterson2020] Patterson, M. (2020). Your Tweet, your voice. Retrieved June 17, 2020, from https: //blog.twitter.com/en_us/topics/product/2020/your-tweet-your-voice.html

[PelletierEtal2014] Pelletier, R., Humphries, K. H., Shimony, A., Bacon, S. L., Lavoie, K. L., Rabi, D., ... Pilote, L. (2014). Sex-related differences in access to care among patients with premature acute coronary syndrome. CMAJ, 186, 497–504. doi:https://doi.org/10.1503/cmaj.131450.

[Piez2001] Piez, W. (2001). Beyond the “descriptive vs. procedural” distinction. Markup Languages: Theory and Practice, 3(2), 141–172.

[Pinder1995] Pinder, R. (1995). Bringing back the body without the blame?: The experience of ill and disabled people at work. Sociology of Health & Illness, 17, 605–631. doi:https://doi.org/10.1111/1467-9566.ep10932129.

[Rooth2017] Rooth, M. A. (2017). The prevalence and impact of vision and hearing loss in the elderly. North Carolina Medical Journal, 78, 118–120. doi:https://doi.org/10.18043/ncm.78.2.118.

[Ryan2014] Ryan, F. (2014). Social media means the voices of the disabled can no longer be ignored by those in power. Retrieved August 7, 2014, from https://www.newstatesman.com/2014/07/social-media-means-voices-disabled-can-no-longer-be-ignored-those-power

[Ryan2018] Ryan, F. (2018). The missing link: Why disabled people can’t afford to #DeleteFacebook. Retrieved April 4, 2018, from https://www.theguardian.com/media/2018/apr/04/missing-link-why-disabled- people-cant-afford-delete-facebook-social-media

[SamulowitzEtal2018] Samulowitz, A., Gremyr, I., Eriksson, E., & Hensing, G. (2018). “Brave men” and “emotional women”: A theory-guided literature review on gender bias in health care and gendered norms towards patients with chronic pain. Pain Research and Management. doi:https://doi.org/10.1155/2018/6358624.

[ShakespeareWatson1997] Shakespeare, T., & Watson, N. (1997). Defending the social model. Disability & Society, 12, 293–300. doi:https://doi.org/10.1080/09687599727380.

[Sloan2002] Sloan, D. (2002). Creating accessible e-learning content. In J. Seale, L. Phipps, & A. Sutherland (Eds.), Access all areas: Technology, disability and learning (pp. 35–41). Association for Learning Technology.

[Smith2019] Smith, S. E. (2019). Disabled people don’t need so many fancy new gadgets. We just need more ramps. Retrieved April 30, 2019, from https://www.vox.com/first-person/2019/4/30/18523006/disabled-wheelchair-access-ramps-stair-climbing

[SperbergMcQueen1991] Sperberg-McQueen, C. M. (1991). Text in the electronic age: Texual study and textual study and text encoding, with examples from medieval texts. Literary and Linguistic Computing, 6, 34–46. doi:https://doi.org/10.1093/llc/6.1.34.

[SperbergMcQueen1994] Sperberg-McQueen, C. M. (1994). The Text Encoding Initiative: Electronic text markup for research. In Literary texts in an electronic age: Scholarly implications and library services (papers presented at the 1994 clinic on library applications of data processing) (pp. 35–55). University of Illinois.

[SuttonvUSA1999] Sutton v. United Air Lines, Inc. (97-1943) 527 U.S. 471. (1999). Supreme Court of the United States.

[Sidley2014] The Use of Inaccessible Technology by Educational Institutions. (2014). Retrieved August 4, 2014, from https://www.sidley.com/en/insights/newsupdates/2014/08/the- use-of-inaccessible-technology-by-educational-institutions

[Tremain2017] Tremain, S. (2017). Foucault and feminist philosophy of disability. Ann Arbor: University of Michigan Press.

[TwitterSupport2020] Twitter Support. (2020, June 17). Hey Matthew, this is an early version of this feature and we’re exploring ways to make these types of Tweets accessible to everyone. Retrieved from https://twitter.com/TwitterSupport/status/1273332642113617921

[WassermanEtal2016] Wasserman, D., Asch, A., Blustein, J., & Putnam, D. (2016). Disability: Definitions, models, experience. In E. N. Zalta (Ed.), The Stanford encyclopedia of philosophy (Summer 2016). Metaphysics Research Lab, Stanford University.

[WigginsEtal2020] Wiggins, L. D., Durkin, M., Esler, A., Lee, L.-C., Zahorodny, W., Rice, C., ... Morrier, M. J., et al. (2020). Disparities in documented diagnoses of autism spectrum disorder based on demographic, individual, and service factors. Autism Research, 13, 464–473. doi:https://doi.org/10.1002/aur.2255.

[WHO2015] World Health Organization. (2015). The impact of myopia and high myopia: Report of the Joint World Health Organization–Brien Holden Vision Institute global scientific meeting on myopia. World Health Organization.

[YeattsEtal2003] Yeatts, K., Davis, K. J., Sotir, M., Herget, C., & Shy, C. (2003). Who gets diagnosed with asthma? frequent wheeze among adolescents with and without a diagnosis of asthma. Pediatrics, 111, 1046–1054. doi:https://doi.org/10.1542/peds.111.5.1046.



[1] By comparison, 17.6% of disabled women are employed in food preparation, food serving, and sales, while 13.6% of disabled men and 14.2% of non-disabled men work in these fields. Disabled people are also more likely to work in buildings and grounds cleaning and maintenance jobs: 5.6% of disabled compared with 3.6% of non-disabled workers (6%/5.1% of disabled men/women; 3.9%/3.2% of non-disabled men/women) BLS2020a.

[2] As has been noted in a dissenting opinion by U.S. Supreme Court Justice Stevens, this is an interesting state of affairs, since most people requiring assistive devices to compensate for an impairment (such as people who wear prosthetic limbs) are considered disabled because of their uncorrected functioning in comparison with statistical norms SuttonvUSA1999.

[3] Although this paper focuses on disability, I am not arguing that disability should be the only concern of accessible design. Recognition of the different needs of people with a variety of cultural, linguistic, and educational backgrounds is also key, as is ensuring that products and services are equally usable by people of different sexes, ethnicities, skin tones, and body sizes, amongst other characteristics.

×

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Carrington, R. (2020). Stop assuming I’m not disabled just because I don’t ‘look disabled’. Retrieved January 8, 2020, from https://rootedinrights.org/stop-assuming-im- not-disabled-just-because-i-dont-look-disabled/

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Chen, E. H., Shofer, F. S., Dean, A. J., Hollander, J. E., Baxt, W. G., Robey, J. L., ... Mills, A. M. (2008). Gender disparity in analgesic treatment of emergency department patients with acute abdominal pain. Academic Emergency Medicine, 15, 414–418. doi:https://doi.org/10.1111/j.1553-2712.2008.00100.x.

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Cortland, M. (2020, June 17). The Americans With Disabilities Act was signed into law 30 years ago. Federal law requires accessibility from the start. You don’t, as a matter of civil rights law, get to roll out an inaccessible feature and then, only later, make it accessible. Retrieved from https://twitter.com/mattbc/status/1273343680645140490

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Dubbin, L. A., Chang, J. S., & Shim, J. K. (2013). Cultural health capital and the interactional dynamics of patient-centered care. Social Science & Medicine, 93, 113–120. doi:https://doi.org/10.1016/j.socscimed.2013.06.014.

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Duff, B. L. (2019). Is myopia a disability? Retrieved June 2019, from https: //www.allaboutvision.com/conditions/myopia-faq/is-myopia-a-disability.htm

×

Erard, M. (2017). Why sign-language gloves don’t help deaf people. Retrieved November 9, 2017, from https://www.theatlantic.com/technology/archive/2017/11/why- sign-language-gloves-dont-help-deaf-people/545441/

×

Eveleth, R. (2017). When disability tech is just a marketing exercise. Retrieved November 8, 2017, from https://theoutline.com/post/2452/when-disability-tech-is-just-a- marketing-exercise?zd=4&zi=35m6bccr

×

Finkelstein, V. (1999). The biodynamics of disablement. In H. Cornielje, J. Jelsma, & A. Moyo (Eds.), Proceedings of the Workshop on Research Informed Rehabilitation Planning in Southern Africa. Department of Public Health, Leidse Hogeschool, Leiden.

×

Finkelstein, V. (2001). The social model of disability repossessed. Manchester Coalition of Disabled People, 1–5.

×

Gould, J., & Ashton-Smith, J. (2011). Missed diagnosis or misdiagnosis? girls and women on the autism spectrum. Good Autism Practice (GAP), 12, 34–41.

×

Greenspan, R. E. (2020). ‘I wish we could connect on this level.’ memes still aren’t accessible to people who are blind. what’s being done about it? Retrieved January 27, 2020, from https://time.com/5759721/meme-accessibility-blind/

×

Grieve-Smith, A. (2016). Ten reasons why sign-to-speech is not going to be practical any time soon. Retrieved April 12, 2016, from http://grieve-smith.com/blog/2016/04/ten-reasons-why-sign-to-speech-is- not-going-to-be-practical-any-time-soon/

×

Haegele, J. A., & Hodge, S. (2016). Disability discourse: Overview and critiques of the medical and social models. Quest, 68(2), 193–206. doi:https://doi.org/10.1080/00336297.2016.1143849.

×

Halberstam, J. (2017). Trigger happy: From content warning to censorship. Signs: Journal of Women in Culture and Society, 42, 535–542. doi:https://doi.org/10.1086/688189.

×

Haney, J. L. (2016). Autism, females, and the DSM-5: Gender bias in autism diagnosis. Social Work in Mental Health, 14, 396–407. doi:https://doi.org/10.1080/15332985.2015.1031858.

×

Hendren, S. (2016). The accessible icon project. Retrieved 2016, from http://accessibleicon.org/

×

Hoffmann, D. E., & Tarzian, A. J. (2001). The girl who cried pain: A bias against women in the treatment of pain. The Journal of Law, Medicine & Ethics, 28, 13–27. doi:https://doi.org/10.1111/j.1748-720X.2001.tb00037.x.

×

ISO. (2007). ISO 7001:2007 Graphical symbols — Public information symbols. Retrieved from https://www.iso.org/standard/41081.html

×

Jackson, L. (2019). A community response to a #DisabilityDongle. Retrieved April 22, 2019, from https://medium.com/@eejackson/a-community-response-to-a-disabilitydongle-d0a37703d7c2

×

Jacobs, A. (2018). Global need for eyeglasses: The biggest health crisis you’ve never heard of. Retrieved May 5, 2018, from https://www.seattletimes.com/nation-world/new- focus-on-global-need-for-eyeglasses/

×

Jani-Friend, I. (2019). My disabilities are invisible. I shouldn’t have to prove them to strangers. Retrieved August 9, 2019, from https://www.theguardian.com/commentisfree/2019/aug/09/disabilities- invisible-prove-stangers-disabled-services-illnesses

×

Joachim, D. S. (2006). Computer technology opens a world of work to disabled people. Retrieved March 1, 2006, from https://www.nytimes.com/2006/03/01/technology/computer-technology- opens-a-world-of-work-to-disabled-people.html

×

Katz, S. (2020). Twitter just rolled out a feature that’s inaccessible to disabled users. Retrieved June 19, 2020, from https://slate.com/technology/2020/06/twitter-voice-tweets-accessibility.html

×

Lyons, K. (2020). Twitter’s audio tweets revealed an accessibility miss, and now the company wants to fix it. Retrieved June 18, 2020, from https://www.theverge.com/2020/6/18/21296032/twitter-audio-tweets- accessibility-volunteers

×

O’Hear, S. (2016). Tech companies don’t want to talk about the lack of disability diversity reporting. Retrieved November 7, 2016, from https://techcrunch.com/2016/11/07/parallel-pr-universe/?guccounter=1

×

Office for National Statistics. (2019). Disability and education, UK: 2019. U.K. Government.

×

Patterson, M. (2020). Your Tweet, your voice. Retrieved June 17, 2020, from https: //blog.twitter.com/en_us/topics/product/2020/your-tweet-your-voice.html

×

Pelletier, R., Humphries, K. H., Shimony, A., Bacon, S. L., Lavoie, K. L., Rabi, D., ... Pilote, L. (2014). Sex-related differences in access to care among patients with premature acute coronary syndrome. CMAJ, 186, 497–504. doi:https://doi.org/10.1503/cmaj.131450.

×

Piez, W. (2001). Beyond the “descriptive vs. procedural” distinction. Markup Languages: Theory and Practice, 3(2), 141–172.

×

Pinder, R. (1995). Bringing back the body without the blame?: The experience of ill and disabled people at work. Sociology of Health & Illness, 17, 605–631. doi:https://doi.org/10.1111/1467-9566.ep10932129.

×

Rooth, M. A. (2017). The prevalence and impact of vision and hearing loss in the elderly. North Carolina Medical Journal, 78, 118–120. doi:https://doi.org/10.18043/ncm.78.2.118.

×

Ryan, F. (2014). Social media means the voices of the disabled can no longer be ignored by those in power. Retrieved August 7, 2014, from https://www.newstatesman.com/2014/07/social-media-means-voices-disabled-can-no-longer-be-ignored-those-power

×

Ryan, F. (2018). The missing link: Why disabled people can’t afford to #DeleteFacebook. Retrieved April 4, 2018, from https://www.theguardian.com/media/2018/apr/04/missing-link-why-disabled- people-cant-afford-delete-facebook-social-media

×

Samulowitz, A., Gremyr, I., Eriksson, E., & Hensing, G. (2018). “Brave men” and “emotional women”: A theory-guided literature review on gender bias in health care and gendered norms towards patients with chronic pain. Pain Research and Management. doi:https://doi.org/10.1155/2018/6358624.

×

Shakespeare, T., & Watson, N. (1997). Defending the social model. Disability & Society, 12, 293–300. doi:https://doi.org/10.1080/09687599727380.

×

Sloan, D. (2002). Creating accessible e-learning content. In J. Seale, L. Phipps, & A. Sutherland (Eds.), Access all areas: Technology, disability and learning (pp. 35–41). Association for Learning Technology.

×

Smith, S. E. (2019). Disabled people don’t need so many fancy new gadgets. We just need more ramps. Retrieved April 30, 2019, from https://www.vox.com/first-person/2019/4/30/18523006/disabled-wheelchair-access-ramps-stair-climbing

×

Sperberg-McQueen, C. M. (1991). Text in the electronic age: Texual study and textual study and text encoding, with examples from medieval texts. Literary and Linguistic Computing, 6, 34–46. doi:https://doi.org/10.1093/llc/6.1.34.

×

Sperberg-McQueen, C. M. (1994). The Text Encoding Initiative: Electronic text markup for research. In Literary texts in an electronic age: Scholarly implications and library services (papers presented at the 1994 clinic on library applications of data processing) (pp. 35–55). University of Illinois.

×

Sutton v. United Air Lines, Inc. (97-1943) 527 U.S. 471. (1999). Supreme Court of the United States.

×

The Use of Inaccessible Technology by Educational Institutions. (2014). Retrieved August 4, 2014, from https://www.sidley.com/en/insights/newsupdates/2014/08/the- use-of-inaccessible-technology-by-educational-institutions

×

Tremain, S. (2017). Foucault and feminist philosophy of disability. Ann Arbor: University of Michigan Press.

×

Twitter Support. (2020, June 17). Hey Matthew, this is an early version of this feature and we’re exploring ways to make these types of Tweets accessible to everyone. Retrieved from https://twitter.com/TwitterSupport/status/1273332642113617921

×

Wasserman, D., Asch, A., Blustein, J., & Putnam, D. (2016). Disability: Definitions, models, experience. In E. N. Zalta (Ed.), The Stanford encyclopedia of philosophy (Summer 2016). Metaphysics Research Lab, Stanford University.

×

Wiggins, L. D., Durkin, M., Esler, A., Lee, L.-C., Zahorodny, W., Rice, C., ... Morrier, M. J., et al. (2020). Disparities in documented diagnoses of autism spectrum disorder based on demographic, individual, and service factors. Autism Research, 13, 464–473. doi:https://doi.org/10.1002/aur.2255.

×

World Health Organization. (2015). The impact of myopia and high myopia: Report of the Joint World Health Organization–Brien Holden Vision Institute global scientific meeting on myopia. World Health Organization.

×

Yeatts, K., Davis, K. J., Sotir, M., Herget, C., & Shy, C. (2003). Who gets diagnosed with asthma? frequent wheeze among adolescents with and without a diagnosis of asthma. Pediatrics, 111, 1046–1054. doi:https://doi.org/10.1542/peds.111.5.1046.